Jenny is 9 years old and like most children, finds it difficult to explain her pain. She told us how she manages her pain. It is very difficult to get a diagnosis of EDS or HSD in children but the symptoms persist and need managing. Parents often have to work out how to do this themselves. We provide management advice to parents through online articles, conference, peer to peer support, and our freephone helpline open Monday to Friday on 0800 907 8518 or at helpline@ehlers-danlos.org

Jenny: Living with pain in Ehlers-Danlos syndrome [pw7AcDYpG]

Jenny is 9 years old and like most children, finds it difficult to explain her pain. She told us how she manages her pain. It is very difficult to get a diagnosis of EDS or HSD in children but the symptoms persist and need managing. Parents often have to work out how to do this themselves. We provide management advice to parents through online articles, conference, peer to peer support, and our freephone helpline open Monday to Friday on 0800 907 8518 or at helpline@ehlers-danlos.org